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The Journal of School Nursing
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Feature Article

Caring for Children With Cystic Fibrosis: A Collaborative Clinical and School Approach

MaryAnn Tapper Strawhacker, RN, MPH

MaryAnn Tapper Strawhacker, RN, MPH, is a nurse consultant for the Heartland Area Education Agency, Johnston, IA

Joyce Wellendorf, RN, BS, CPN, CNRN

Joyce Wellendorf, RN, BS, CPN, CNRN, is the cystic fibrosis clinic coordinator at the Blank Children’s Health Center, Des Moines, IA

Earlier diagnosis and more effective treatments have improved both morbidity and mortality associated with cystic fibrosis, making regular school attendance a reality. School nurses have a unique opportunity to assist students with cystic fibrosis successfully manage their disease. Medical treatment for cystic fibrosis can be complex, leaving students and families in need of health consultation and support. The clinic and school nurse each brings a unique perspective to cystic fibrosis care management. Working to understanding perspectives across settings and looking for ways to collaborate through mutual planning and goal setting is an ideal way to support families and promote achievement of optimal health status for students.

Key Words: accommodation • chronic illness • collaboration • cystic fibrosis • school nurse

The Journal of School Nursing, Vol. 20, No. 1, 5-15 (2004)
DOI: 10.1177/10598405040200010301
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