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The Journal of School Nursing
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Feature Article

The Cognitive and Academic Impact Of Sickle Cell Disease

Sara Day, RN, MSN

Sara Day, RN, MSN, is the nursing director of the International Outreach Program at St. Jude Children’s Research Hospital, Memphis, TN

Elisabeth Chismark, RN, MSN

Elisabeth Chismark, RN, MSN, is a clinical nurse specialist for the Adolescent Sickle Cell Clinic at St. Jude Children’s Research Hospital, Memphis, TN

Sickle cell disease (SCD) affects over 30,000 students in the United States. Central nervous system complications are widespread among students with SCD and include stroke, silent cerebral infarction, and cognitive impairment. The effects of these complications may lead to academic failure, limited career options, and for some, total disability. Despite studies describing the significant academic and cognitive impact of sickle cell disease, reports describing interventions are limited. There is a lack of awareness among educators of the academic risks associated with sickle cell disease and a lack of appropriate resource allocation. The school nurse, as community health advocate, will be called upon to bridge the gap among healthcare providers, parents, students, and educators. This article provides a review of both recent and landmark studies describing the cognitive and academic impact of sickle cell disease and discusses the role of the school nurse as an advocate, liaison, and educator.

Key Words: absenteeism • academic failure • cognitive impairment • sickle cell disease • silent cerebral infarction • stroke

The Journal of School Nursing, Vol. 22, No. 6, 330-335 (2006)
DOI: 10.1177/10598405060220060401
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